Showing posts with label donors. Show all posts
Showing posts with label donors. Show all posts

Thursday, June 2, 2011

When Ethics Losing Out To Logics

Free Market Babies And Reproductive Tourism 
As egg sales, IVF and surrogacy become more common and commercial, a conflict arises between social justice and profit.
Donna Dickenson

Does India need a new independence struggle?

The fight this time would not be against British colonialism, but rather against the United Kingdom's approach to regulating reproductive medicine. At a time when India is considering a sort of match-making service for Western couples seeking to hire Indian surrogate mothers, the UK government has announced the abolition of two leading medical regulatory agencies.

Meanwhile, as these countries move farther down the road to free markets in reproductive medicine, France is debating all of its bioethics laws - and continuing to stand up for a different model - focused on social justice and protection of vulnerable women. There is an alternative simply to letting the market decide, the French Assembly insists.

At some point, many countries are likely to find themselves embroiled in similar debates and controversies over reproductive rights and obligations. So it is necessary to clarify what is at stake in how we regulate - or de-regulate - in vitro fertilisation (IVF), egg sales, and surrogacy.

It may come as a surprise to observers in the US, in particular, that the British approach could be considered "free market". After all, the UK forbids outright payment for eggs, whereas in the United States, a highly differentiated market has grown up around "consumer demand". And the UK has a national regulatory agency for IVF, whereas the US has a patchwork of state regulations (or a lack thereof).

But the UK's Human Fertilisation and Embryology Authority (HFEA) might not be around for much longer. Prime Minister David Cameron's government announced in July that it intended to abolish the HFEA by 2014, along with the Human Tissue Authority, which deals with non-reproductive tissues. Already, the HFEA appears to be attempting to preempt the government by softening its regulatory touch.

Last month, the HFEA finished a consultation on increasing the level of "expenses" payable for eggs used in IVF. European law forbids outright payment for eggs, but the Authority suggests that increasing "expenses" considerably would not constitute an impermissible inducement. The HFEA is merely "removing disincentives", not "creating incentives". You could be forgiven for missing the difference.

Proponents of the Assisted Reproductive Technologies Regulation Bill 2010, now before the Indian Parliament, employ a similar rhetorical twist. They say that the bill actually protects surrogate mothers - for example, by limiting the number of pregnancies they can undergo. But the law would make surrogacy contracts legally binding, requiring the mother to give up the baby even if she changes her mind.

Opponents say that the agencies making the arrangements will be the biggest winners - that the huge profits they reap will dwarf the fees paid by foreign couples to the women bearing their children. As NB Sarojini and Aastha Sharma wrote in the Indian Journal of Medical Ethics, "The Bill actively promotes medical tourism in India for reproductive purposes." 

Reproductive tourism

France, like most European countries, has a problem with reproductive tourism: a yearly shortage of about 700 egg donors sends some couples over the Pyrenees to Spain, where private IVF clinics pay providers more in "expenses" than the UK allows. Even so, the draft bill continues to prohibit payment for eggs.

And it's not just France's official ethics committee that takes an anti-commodification stance. The French have recently conducted a series of two-day meetings in several provincial cities. In Rennes, the panel debating reproductive medical issues supported the policy of not paying for eggs or sperm - not even by the back door of increasing the level of "expenses".

While the HFEA document calls for ethical concerns to be "balanced" against increasing egg supply, French Assembly members insist that law, morality, and progress are compatible. They reject the view that ethics is optional, even though some influential professors, such as Rene Frydman, who helped to create the first French IVF baby, have warned that France will fall behind in the science race unless it abandons its principles. The upper house, the Senate, was much more minded to listen to that view, so the outcome is still uncertain.

France is no Shangri-La, isolated from global markets or the pressures of international research. In the words of Emmanuel Hirsch, professor of medical ethics at the University of Paris-XI, "How long can our bioethical standards continue to resist the rise of other logics - particularly financial ones?"

To be sure, French regulation can be heavy-handed. For example, IVF is restricted to heterosexual couples who are married or in long-term relationships. The official rationale was that eggs and sperm are not commodities, but gifts from a fertile couple to an infertile one.

That is also one reason why the French restricted egg donation to women who had already had at least one baby (though this is being changed).

But the limitation to heterosexual couples was rightly condemned as homophobic by the French public in the consultations. So the draft bill has been amended to allow lesbian women to receive donated eggs. Gay men will still be barred, because they would require a surrogate, and surrogacy remains prohibited.

That sort of responsiveness to popular sentiment in the legislative process gives the lie to the canard that French regulation is inflexible and hopelessly bureaucratic. In fact, the free-market "Anglo-Saxon" attitude sounds like nothing so much as the old prejudices about the French that have been around since the novelist Thackeray told English readers: "The Frenchman has after his soup a dish of vegetables, where you have one of meat. You are a different and superior animal - a French-beating animal."

Of course, we now know that a diet of bully beef is likely to result in hardening of the arteries, whereas the vegetable-centered Mediterranean diet is much better for human health. Enough said? 

Donna Dickenson, Emeritus Professor of Medical Ethics and Humanities at the University of London, won the International Spinoza Lens Award in 2006 for contributions to public debate on ethics. Her latest book is Body Shopping: Converting Body Parts to Profit.

A version of this article was previously published on the Project Syndicate.

The views expressed in this article are the author's own and do not necessarily represent Al Jazeera's editorial policy. 

Source: AlJazeera - May 30, 2011

Monday, July 12, 2010

The Reluctant Organs Have Their Final Say

The Star: July 12, 2010 - Tainted Organ Transplants

 

SUBANG JAYA: Some Malaysians who went abroad for organ transplants have returned home with HIV, hepatitis and other problems, a World Health Organisation (WHO) adviser said. “It is time to amend laws and establish a full-time agency to have more and ethical organ donations in the country,” said Prof Dr Francis Delmonico, calling on legislators to push for laws against organ trafficking and transplant tourism in Malaysia.
He also suggested that the authorities look into the possibility of organ donation for cases of cardiac death and not only in brain dead cases.
“There are many cases of Malaysians going abroad for organ transplants.
“There is no guarantee of the quality of organs. In many cases, the patients returned with HIV, hepatitis and other problems,’’ said Dr Delmonico, a WHO adviser on human organ transplantation.
He was speaking at a forum on “Organ Trafficking and Transplant Tourism – The Need for Regulatory and Legislative Control” at the 13th Scientific Meeting of the Malaysian Society of Transplantation at the Grand Dorsett Hotel here on Friday night.
Dr Delmonico said the commercialisation of organs go against the Istanbul Declaration, which proclaims that the poor who sell their organs are being exploited.
The declaration, signed by participants of an international summit on transplant tourism and organ trafficking in 2008, concluded that organ trafficking and transplant tourism violate respect for human dignity and the principles of equity and justice and should be prohibited.
Health Ministry head of nephrology services Dr Ghazali Ahmad, in his talk on “Hurdles of Living Unrelated Organ Donation” said that in 2009, 17 kidney failure patients received transplant from dead donors and nine from live donors.
In 2008, there were 53 from deceased donors and one from a live donor. In 2007, it was 45 from deceased donors and three from live donors.
The statistics were gathered after patients returned home from abroad to seek post-transplant treatment.
Kidney transplants made available from deceased donors were believed to be organs from executed prisoners in China.

******

The Straits Times: June 7, 2010 - Black Organ Market Rakes On Poverty And Hope

Organ trafficking middleman Liu Qiangshen sits in the court showing his side scar left after a liver transplantation operation. (photo by Beijing Morning Post)
Organ trafficking middleman Liu Qiangshen sits in the court showing his side scar left after a liver transplantation operation. (photo by Beijing Morning Post)
Barely coming of age and lacking money, 19-year-old Yang Nian sold almost two thirds of his liver, for which a Beijing patient in urgent need of organ transplant paid 150,000 yuan (S$21,900).

But the money only ended up in the hands of organ trafficking middleman Liu Qiangsheng, who assembled a score of hatchet men to beat up a scarred Yang when he came to claim his liver fees. Yang got a mingy 25,000 yuan (S$3,660), not the promised dole of 35,000 yuan (S$5,130), the Beijing Morning Post reported Thursday.

The stomach-turning report details Yang's wait for a suitable buyer in a slum along with other reluctant donors in central Hebei province as well as his physical checkup and identity forgery in order to pass for a legal organ supplier for the Beijing patient

The Beijing patient, at first unwitting of Yang's pathetic compensation, was also threatened by the middleman if he dared refuse further payment out of previous bargain.

"We only learned later that the middleman Liu just gave Yang that little, we are very angry, but we are also very scared and could do nothing," said the patient's wife. The couple paid a huge sum to the middleman, only with borrowed money.

The case, still under investigation, shed light on a rampant organ trafficking market reigned by unscrupulous middlemen, intertwined with hospitals sometimes, who rake in the organ donation dearth in China where for every 150 patients in the waiting line of organ transplant there is only one legal donor.

The black organ market is so organized that it runs like an assembly line.

The middlemen draw together a group of illegal donors, mostly male, offering food and board before ushering them through a series of medical examinations to kick out the unhealthy and the unprofitable, like those with AB blood, accounting only 5 percent of the general population.

The middlemen even help to bribe doctors and secure a better hospital, not to mention the cheap identity fabrication as in Yang's case, since organ donation by a living individual should be among relatives in China.

While, for the most part of the job, it is waiting, sometimes endlessly, for a suitable buyer. That's why most middlemen choose to foster a large donator group, increasing the chance of medical matches, and larger profits.

In Thursday's news report, a middleman in eastern Jiangsu, surnamed Wang, bragged how he fostered 190 underground donors in the past two years and successfully channeled over 30 transplant cases. Another in northeastern Shenyang assured that he could secure an organ donation in three days, and could even offer an extra donor as a backup.

So far the only organ donation regulation in China is a toothless bylaw which forbids, rather than criminalizes, organ trafficking as illegal business operations. Legal specialists said the punishment doesn't fit the crime.

******

 

The Star: June 7, 2010  - China's Grisly Human Organs Market

China's human organs trade is grisly but lucrative
China's human organs trade is grisly but lucrative

China's black market for human organs is booming.

Nearly 1.5 million people require organ transplants every year but according to the Health Ministry, only ten thousand can get what they need.

China banned organ transplants from living donours in 2007 (with the exception of spouses, blood relatives or adopted family members) and it was not until last year that a national campaign to coordinate donations after death was launched.

A defendant charged with trafficking human organs testified recently that half a liver can cost up to RM21,980.95, while an entire transplant, which includes operation and recovery costs, runs at about RM66,710.00.

"The crime can damage society and moral values," says the Procuratorial Daily.
"I believe I was helping people, not harming others. I saved the life of the person who received my liver. He was only in his 30s. I do not regret it," says defendant, Liu Qiangsheng.

Human organ traffickers have helped raise the percentage of transplants from living donors in China up to 40 percent in the last few years.

This number is up from 15 percent in 2006. Despite this, two-thirds of all organs harvested for transplant in China come from executed criminals.
"Executed prisoners are definitely not a proper source for organ transplants," said Vice Minister Huang Jiefu.
China is trying to move away from the use of executed prisoners and curb illegal trafficking by developing new sources for organ transplants.

A voluntary donation scheme is in the works, but may prove very difficult to implement due to China’s cultural bias against removing organs after death.
While change is in the works, organ trafficking remains a dark and grisly aspect of black market operations.